Padbury charity thanks its helpers during national Volunteers Week

Family has raised nearly £9,000 for Brain Tumour Research since devastating diagnosis

Tuesday, 1st June 2021, 12:42 pm
Updated Tuesday, 1st June 2021, 12:44 pm

A charity launched from offices in Padbury is saying a special thank you to some of its volunteers during national Volunteers’ Week, from June 1 to 7.

Among the volunteers that the charity Brain Tumour Research relies upon are Lorraine White and her 24-year-old granddaughter Shannon Moore.

Lorraine started volunteering at the charity’s head office when it was still in Padbury in 2012 - before it moved to its current premises in Milton Keynes - in order to give something back after Shannon was diagnosed with a brain tumour at the age of nine.

Shannon and Lorraine volunteering at Ascot

Lorraine said: “Shannon was diagnosed in 2005 with a craniopharyngioma brain tumour after suffering with headaches and was referred to an ophthalmologist who advised she had diagnostic testing. The results were unclear so Shannon underwent an MRI scan. As we have eye problems in the family, it was a huge shock to learn that Shannon actually had a brain tumour."

Shannon has undergone a number of surgical procedures over the years to remove a cyst, but the tumour itself couldn’t be removed because of its location in the centre of her brain. Shannon also has had radiotherapy, as well as hormone treatment to ensure she continued to grow properly, because the tumour was near the pituitary gland.

Her most recent craniotomy in 2014, when she was 17, resulted in Shannon losing the sight in her right eye and she has very limited ‘letterbox’ vision in her left eye. Shannon now walks with a white cane and has a Labrador retriever guide dog called Indy, who helps her remain independent.

Lorraine said: “Despite living with long-term difficulties as a result of her brain tumour diagnosis, I am so proud of her, and particularly proud that she graduated from the University of Portsmouth with a degree in music and sound technology.

Shannon and Lorraine on the Walk of Hope

“Shannon and I both volunteer at Brain Tumour Research to give something back. Our tasks often involve sending out merchandise to the charity’s supporters to help them with their fundraising, along with other volunteers. I just love working with the team. It makes me happy to see us making a difference.

“I have also helped by manning the charity’s stall at Christmas fairs and the Bucks County Show.”

Shannon said: “The rewarding aspect of volunteering is how much I have seen the charity grow since I first volunteered during my school summer holidays back in 2013. Witnessing the increase in donations over the years has been a real privilege and I enjoy being treated as part of the team and being welcomed as a staff member.”

Lorraine, husband Trevor and Shannon are also committed fundraisers for the charity. Both Trevor and Shannon have taken on a charity abseil, Lorraine and Shannon have taken part in events such as Wear A Hat Day, a fire walk and a Walk of Hope and Trevor has taken part in a number of cycling events including the Prudential Ride London-Surrey 100.

Lorraine White, Shannon Moore and Shannon's mum Paula White on the Walk of Hope

Together the family have raised nearly £9,000 to help fund vital research into brain tumours.

Brain Tumour Research spokesman Charlie Allsebrook said: “We are thrilled to celebrate Volunteers Week by recognising our treasured volunteers and thank Shannon and Lorraine and everyone who plays this vital role.

“As well as volunteers at head office, we rely on people in the field who help out in all sorts of ways, including at fundraising events, by selling Christmas cards on our behalf, or by processing our collecting tins.”

Brain Tumour Research funds sustainable research at dedicated centres in the UK. It also campaigns for the government and the larger cancer charities to invest more in research into brain tumours in order to speed up new treatments for patients and, ultimately, to find a cure. The charity is calling for a national annual spend of £35 million in order to improve survival rates and patient outcomes in line with other cancers such as breast cancer and leukaemia and is also campaigning for greater repurposing of drugs.

Brain tumours kill more children and adults under the age of 40 than any other cancer, yet historically just 1% of the national spend on cancer research has been allocated to this disease.

You can find more information about volunteering for Brain Tumour Research here